Food Allergy and Inclusion

Kristin Beltaos interviewed by Katja Rowell, M.D. for Extreme Picky Eating Help

Food Allergy and Inclusion: Introduction by Katja Rowell M.D.: Children may face eating challenges for various reasons. Children with extreme picky eating tend to experience higher levels of anxiety, around food and in general. Perhaps the most anxiety-provoking feeding challenge that parents face is life-threatening food allergies. Some children with extreme picky eating also struggle with food allergies, which can complicate the picture even further. Kristin Beltaos has made it her mission to help parents and children not just be safer and healthier, but thrive. We were intrigued and impressed with Kristin Beltaos’ work with parents, children, and schools (A Gift of Miles). She has graciously agreed to share some wisdom in our first guest blog post.

1. Food Allergy and Inclusion – Spotlight of Difference intrigues us. Can you tell us more?

First off Katja and Jenny, thank you for the opportunity to communicate with you and your followers.

food allergy and inclusionUsually when you think of placing a spotlight on a child you think of something positive, i.e., accomplishing an awesome grade, playing a great sport game, writing a wonderful paper or doing well in a recital. These are all great ways to shine a positive spotlight on a child.

It’s fascinating how when we are confronted with a challenging situation, such as creating a safe environment for a food allergic child, our initial instinct is to determine how a child will adapt to our environment, rather than how the situation can be modified so that it’s safe for everyone. When we only address the individual child it will almost always create a Spotlight of DifferenceTM.

In our efforts to create safe environments for children with food allergies, parents and schools alike often shine an unnecessary Spotlight of Difference TM on these children that I believe is a catalyst for anxiety in food allergic children as well as food allergy teasing and bullying. We need to understand that safety does not always equal separateness and vice versa. I believe it’s our inability to view the picture creatively and holistically that causes us to go the easy route and shine an unnecessary Spotlight of Difference TM.

When I use this in my training, I have attendees actually work through real life examples on how to create more inclusiveness and diminish the Spotlight of Difference TM. It’s really stirring to see people get creative and excited about how to make life for a food allergic child better. I think so often we don’t like what is happening, like an allergy table, but we don’t take the time to think about how we can do it differently.

2. Food Allergy and Inclusion – How does this relate not just to food allergies, but also children with extreme picky eating, and even beyond food, to other differences?

I think we shine a spotlight more often than we think. Let’s examine when treats are used for incentives, rewards and celebrations.

Food Allergy and InclusionI always like to share about the first year when my youngest son was old enough to eat Halloween candy. My youngest son sat down to Twix®, Milky Way® and Hershey® candy bars while my child that has food allergies had in front of him Starburst®, DOTS® and Smarties®. You cannot look at these treats and equate them as being in the same category. You can’t “sex up” the non-chocolate treats, there’s just no comparison, unless of course you aren’t a chocolate fan.

My point is, you wouldn’t have your child’s three friends over and provide three of the children with delicious chocolate and one child with the other variety. How do we solve this dilemma? If you’re having a school-wide celebration, then that means finding a treat that is safe for all based upon all the dietary restrictions whether that be food allergy, food intolerance, diabetes, Celiac disease, autism, extreme picky eating, ADD, ADHD, etc. If you’re having a classroom celebration then that means finding a safe treat based upon the dietary restrictions within each classroom.

Spotlights don’t always have to be related to food. Each child may learn to read or understand math at a different pace. Stickers, colors, or Popsicle sticks may be used to track progress. Peers will know what level you are at in reading based upon the tracking system utilized. Children may be called out in the hall, to at a separate table or moved to a different classroom for assistance. If a child is learning at a slower pace, he/she may feel embarrassed. I don’t have the answer to this type of spotlight, but as you can see, often times we probably don’t even know that we’re shining a spotlight on a child.

While it may require additional planning, many schools have successfully found ways to socialize, celebrate, incentivize, reward, learn and craft without food or within restrictions surrounding food. It simply takes a little extra effort, and more importantly; just imagine the difference you make in a child’s life that is dealing with a challenge.

To read the rest of the interview about Food Allergy and Inclusion, click to enter the Extreme Picky Eating Help website.

Dr. Xiu-Min Li Keynote Speaker at AFAA Annual Conference

On Saturday, September 17, 2011, the Anaphylaxis and Food Allergy Association of Minnesota (AFAA) had its annual medical conference. As an AFAA board member, I had the privilege of dining with our keynote speaker Dr. Xiu-Min Li, Professor, Pediatric Allergy & Immunology at Mount Sinai School of Medicine. It was truly a pleasure to get to know this gifted woman who has brought so much promise to the food allergy community.

For those unfamiliar with Dr. Li, she has developed the Food Allergy Herbal Formula-2 (FAHF-2), which is derived from a Traditional Chinese Medicine (TCM) formula for the treatment of food allergies.

Initially, a clinical trial was done on mice where FAHF-2 showed it could block allergic reactions to food lasting as much as six months.

Phase I of the human trial showed FAHF-2 was safe and well tolerated in people with multiple food allergies.  This Phase II trial will determine the effectiveness of FAHF-2 when used as a treatment for food allergy.

As Dr. Li stated, “While this research brings with it so much promise, continued research is important to make some of these herbal remedies progress from dietary supplement to prescription drugs.”

Thank you so much Dr. Li for your dedication to the lives of the food allergic.

For more information on this study as well as Dr. Li, Click Here.

Other great presentations were given by:
Allan Stillerman MD, “The Importance of Well-Done Scientific Clinical Research: It Affects You!”
Katja Rowell MD, “Food Allergies & the Feeding Relationship: Reassurance on “Failure to Thrive”
Kristin Beltaos, MA, “Tame the Chipmunk on the Double Espresso”
Andrea Dorn, “Navigating the Gluten Free World”
Anna Kerr, “Easy Exercises to Reduce Everyday Stress”

Special thank you to Nona Narvaez and Jeff Schaefer, the founders of AFAA. Their tireless work is so appreciated!

“Failure to Thrive” Label Fails Parents and Children

Guest Blog Appearance by: Katja Rowell MD

She called near tears, anxious about her infant daughter, haunted by three words used years ago to describe her first son. “Failure to thrive” – few words do more harm to the feeding relationship.  (OK, perhaps, “Do whatever you have to, to get food into that kid,” and the two often go hand in hand…)

“It really got into our heads,” explained Sally as she recounted the struggles she had feeding her son, who’s allergies to eggs, nuts and dairy were discovered while she was breast-feeding. Zack was small, at around the 5th percentile, but thriving socially, physically and emotionally. Doctors however, warned he was officially “underweight,” and threatened a “failure to thrive diagnosis.”

Subsequently, Sally worried and pressured, and his eating got worse, not better. Sally’s experience is supported by the research. Children pressured to eat, generally eat and grow less well. Continue reading